tag:blogger.com,1999:blog-7849311.post5714575303848857230..comments2024-03-10T13:45:03.600-04:00Comments on katycrossen.com: Great NewsKate The Greathttp://www.blogger.com/profile/11338756563094735525noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-7849311.post-34044552773239689542008-06-23T23:21:00.000-04:002008-06-23T23:21:00.000-04:00Thank you for your comment on my blog. I am so so...Thank you for your comment on my blog. I am so sorry to hear about your little Maeve. My thoughts are with you and your sister and brother in law. It was so interesting to read about your Maeve, and how similar some of her experiences were with mine. My daughter also suffered from heart problems and severe reflux. She actually had pneumonia (probably due to reflux aspiration) 4 times. We also coincidentaly had the genetic testing done for her syndrome (CdLS) just a couple days before she died, and got the results about a month later. Neither my husband nor I carry the CdLS gene, it was most likely simply a random mutation (although it is impossible to test for germ line mosaicism and that still can't be entirely rulled out). We did become pregnant again about 8 months after she passed away and now have a totally healthy 1 year old boy. He does not replace my daughter, but he has truly helped us heal. It is so hard to lose your first child. They make you parents, and suddenly you become a parent without a child. Having another helps so much to ease that pain. <BR/>Thank you for being such a wonderful aunt. It means so much to your sister that you remember Maeve. Please put them in contact with me if they need to talk. <BR/>All the best<BR/>Erin<BR/>Maeve Lillian and Isaac's mommyErinhttps://www.blogger.com/profile/16310626933987646435noreply@blogger.com