My niece, Maeve, would have been one-year-old today.
Our hearts are heavy, remembering the special, fleeting gift of her life, which we were so graced to enjoy.
Later today, I will enjoy a birthday remembrance meal with my parents (Brigid and Steve are observing Maeve's birthday in Atlanta - delivering special, homemade cupcakes to the nurses who cared for Maeve at Emory's Sibley Heart Center), including a special "kitty cat cake" my mom had decided on making for Maeve's birthday many, many months ago.
Maeve is not here in the flesh, but I am certain her soul is still with us.
My parents and I are releasing a balloon this afternoon, and attached to it will be messages from them, my youngest sister, Mickie, and myself.
Below is the message I am sending Maeve.
Dear Maevey Bean, I cannot begin to express how much I miss you, but I have plenty of examples of when I think of you and feel your love. I see you when the azure sky is full of puffy clouds. I feel you when the gentle breezes kiss my skin. I smell you on crisp mornings, when the air is full of fresh hope. I see you in sparkling stars and bright sun beams - their radiance is as enduring as your spirit. I smell you in baby pink roses, blossoming for just a fraction of a lifetime and yet a gift to be treasured for eternity. I hear you hiding in the lilt of laughter and I taste you in the salt of my tears. Your spirit, your soul, your love is everywhere, and I will look for the essence of you in everything until the day I see you again. Love, Katy.
There is plenty of information online about Noonan Syndrome, as well as a support group that many families find useful.
*** *** *** ***
I've seen fire and I've seen rain
I've seen sunny days that I thought would never end
I've seen lonely times when I could not find a friend
But I always thought that I'd see you again